I’m comfortably settled into my hotel. Eva is taking excellent care of me. I have daily appointments at the clinic, sometimes taking only an hour or so, other times infusions can last 5-6 hours. Several of my lab results are getting there however my neutrophil counts are still very low along with a few other markers. But, they’re keeping close tabs on me including my using my heart monitor. There’s still a possibility of a CRS or neurological side effect happening, but so far so good. Infection is the big concern over the next half year or more, so that will restrict several activities.

Right now, I’m trying to keep up my strength by taking 30 minute daily walks around the Marriott grounds or in very long maze like hallways. Even using steps if I’m careful and use all the handrails. Eva and my walker are always nearby. I’m also working on some breathing and other exercises. Trying to get some of my muscle tone and energy back.

My appetite is slowly returning, with almost all food restrictions lifted. Back to a more regular diet as long as I’m careful about fats. Basically, try a little bit of something and see how it goes. Karla has been a real trooper organizing and delivering foods that friends have made. Eva and I are well stocked.

The weather here has been pretty overcast with occasional light rain. Cutting down on opportunities to take more outdoor walks. I will still be fairly restricted for many activities once I get home. But, hey, one day at a time.

At this point, my targeted discharge to go home is May 18. Fingers crossed that my bone marrow biopsy the day before confirms I can go home.

The last couple weeks will hopefully be uneventful. I’ll keep you updated.

Big big hug and lots of love.

*California Poppy (Eschscholzia californica), San Bernardino National Forest.

Coville’s Lupine (Lupinus covillei), Ten Lakes, Yosemite National Park.

Blue Dicks (Dipterostemon capitatus subsp. capitatus), Santa Cruz Island Nature Preserve, Channel Islands.
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